We have NEVER been closer to usable treatments then we are today! There are research projects going on and a few are showing strong signs of helping to stabilize or slow mitochondrial disease's steep progressive descent. WHAT A BLESSING!
Years ago when I was told that all 5 of my children most likely had mitochondrial disease one of the older peds pulled me aside and told me to make 'arrangements'. While that was a cruel medical reality given what we knew at the time it about broke me.
This year I have been using Periscope (a online streaming platform) to raise awareness about mitochondrial disease. Hubby has moved that over to YouTube so everyone can see the scopes. Praying we can raise awareness about mito!
There will be more scopes to come.