Tuesday, January 25, 2011

Mito Doctors are on the move

In the past few months there have been several doctors that have moved from their former positions. Sometimes ALL the way across the country!

Dr Bruce Cohen, formerly at Cleveland Clinic, has moved to Akron Children's Hospital. Akron is just down the road from Cleveland about 40 minutes.
Children's Hospital adds big hitters Bruce Cohen comes from Cleveland Clinic, Rich Hertle from Pittsburgh to direct top-level pediatric departments 
One note there while Dr Cohen is the mitochondrial specialist, Dr Hertle is the doctor to see if you child suffers from nystagmus.

Finally a new mitochondrial medicine center is being launched in Philadelphia!

Top Expert on Mitochondrial Disorders Launches New Center at The Children's Hospital of Philadelphia Under the leadership of Dr. Douglas C. Wallace. He used to be in California as the founder and director of the Center for Molecular and Mitochondrial Medicine and Genetics at the University of California-Irvine

Remember if you saw one of these doctors and would like to continue your care with them, YOU are in charge of moving all your medical records to follow them. Call ahead to their new hospital and confirm things like, are you seeing adults, when will the doctor begin seeing patients, and do you take my insurance! 

If your mitochondrial specialist is changing hospital or retiring please leave a comment and let us know! This knowledge can help us make decisions from who we see to where we move. 

Saturday, January 15, 2011

Welcome to Mito Families!

Hello my friends! I needed a landing place for some of the articles and ongoing work of Mito Families! We will continue to have a monthly newsletter! This blog is just adding to how much we can help one another.

Who will benefit from Mito Families? ANY ONE who is affected by mitochondrial disease. Whether it is you personally, your child(ren), your beloved relative, or best friend.

Mito Families! Goal is connect affected people together geographically and online with one another. Mito is a hard disease to handle alone. Together we are so much stronger! Together we can help through experience, encouragement, and understanding.

I welcome ideas on what to post. Do you feel led to write a post? Go right ahead. Keep it rated G.

Again welcome to Mito Families! blog. I will be adding to the blog over the next few days to make to more of a blog home :)