At the peak of Mitochondrial Awareness Week I was struck down. I ended up in the ER on Friday with a PICC line infection. The infection had already jumped to my blood and was causing havoc.
I had staph and yeast system wide :( It took a week of IV antibiotics and anti fungals to get everything under control.
The PICC line was taken out and a PEG tube was put in. I now get fed through a tube in my stomach that can be a G tube, meaning it goes into to the stomach only. Or a Jtube which means it can be extended down into my small intestine.
We are starting with the Gtube option because the stomach is a natural holding place for formula and food and will allow a short burst of larger amounts of food. If we have to go down to the Jtube option I will need a continuous feed because there is no place to hold formula.
Frankly the Gtube option is not going well. My stomach just cannot handle the schedule I was sent home from the hospital on. I have changed down to one of the most elemental formulas and that has helped but not relieved the problem.
This weekend I have two posts that I am putting together by request. One is how does a Gtube feel. Many mito kids have Gtubes but are unable to explain how it feels to their parents. The other article goes with the financial article I wrote last. I forgot to show how expensive and cumbersome supplements can be. Lord willing I will add those articles this weekend!
I hope you all have a wonderful, healthy day!